Collaborative Study Shows Therapy Results Among Mutant Gene Carriers for Stuttering

In collaboration with a research team from the National Institute on Deafness and Other Communications Disorders (NIDCD), Hollins Communications Research Institute (HCRI) recently published a study to evaluate the effectiveness of the institute’s 12-day, behavioral therapy among a group of stutterers who possess one or more of the mutant genes for stuttering compared to the outcomes of a group of stutterers who do not carry any of the mutant genes.

The abstract is presented below.

Purpose

We sought to determine whether outcomes of therapy for persistent developmental stuttering differ in individuals who carry a mutation in a known stuttering gene compared to individuals without such mutations.

Method

We studied outcomes of an intensive fluency shaping-based therapy program in individuals with persistent developmental stuttering. We evaluated a cohort of 51 stuttering individuals with who carried a mutation in either the GNPTAB, GNPTG, NAGPA, or AP4E1 gene. We compared therapy outcomes in these individuals with outcomes in 51 individuals matched for age, gender, and ethnicity, who underwent the same therapy program and did not carry a mutation in any of these genes.

Fluency pre- and post-therapy was evaluated using blinded observer-based quantitative stuttering dysfluency measures (Dysfluent Words Score, DWS), and by subjects’ self-reported measures of struggle, avoidance and expectancy behavior associated with speaking (Perceptions of Stuttering Inventory, PSI). The difference between pre- and post-therapy fluency scores was taken as the measure of near-term therapy efficacy.

Results

Comparison of fluency measures showed a strong effect of therapy overall. Mutation carriers achieved significantly less resolution in PSI following therapy, with PSI scores showing significantly less improvement in individuals who carry a mutation (RR=1.75, OR=2.92, p = 0.0157). There was a trend toward poorer outcomes in mutation carriers measured by changes in DWS.

Conclusion

These results suggest stuttering is more resistant to therapy in individuals who carry a mutation in one of the known stuttering genes.

. . . . . . . . . . .

Reference: Carlos E. Frigerio-Domingues1, Zoi Gkalitsiou2, Alexandra Zezinka1,#, Eduardo Sainz1, Joanne Gutierrez1, Courtney Byrd2, Ronald Webster3, Dennis Drayna1*. (2019) Genetic factors and therapy outcomes in persistent developmental stuttering. Journal of Communication Disorders, 80, 11-17.

 

Click for a summary of all HCRI research on the genetics of stuttering >>

 

About HCRI

Virginia-based HCRI, a 501(c)(3) charitable organization, opened its doors in 1972. Since that time, the insititute has become a leader in stuttering research and the development of innovative, scientifically derived therapy approaches. HCRI clinicians have treated more than 7,000 individuals who stutter. Clients come from all walks of life and include broadcasters, teachers, engineers, musicians, students, doctors, military personnel, business professionals, police officers, actors, a supreme court nominee, and even royalty.

HCRI is located at 7851 Enon Drive, Roanoke, Va. 24019. For more information, visit www.stuttering.org or contact HCRI at (540) 265-5650 or info@stuttering.org.

HCRI Alumni Share Comments in Recognition of the Institute’s 50th Anniversary

Ronald L. Webster, Ph.D.
Ronald L. Webster, Ph.D., HCRI Founder and President

Hollins Communications Research Institute (HCRI) recently achieved the nonprofit’s 50-year milestone. Founded by Ronald L. Webster, Ph.D., HCRI is a  leader in stuttering research, treatment innovation, and the delivery of effective, science-based stuttering therapy. During the past five decades, Dr. Webster and his team have conducted breakthrough research — and pioneered advancements in the understanding and treatment of stuttering.

Thousands of individuals who stutter have come to HCRI’s Virginia treatment center for stuttering therapy. They have come from every state in the U.S. and 50 countries around the world.

In recognition of HCRI and Dr. Webster’s half-century of work to help those who stutter, many therapy alumni sent congratulatory messages, emails and notecards to Dr. Webster. Following are some of the comments he received.

 

Comments Dr. Webster Received from HCRI Alumni:

 

“Decades of conducting groundbreaking research. Fifty years of supervising life-changing therapy.  I continue to be in awe of you, Dr. Webster, for your accomplishments and the benefits you’ve created for so many who have stuttered. Please accept my own profound gratitude and hearty congratulations, and my best wishes for further successes.”

-Alan T.

 

“48 years ago I went through the therapy program, as a young man with very little hope and direction in my life. My grades were bad and my social life was not very good. After participating in the HCRI program, it felt like I was on a natural high. My grades soared and my social and personal life was so much better. I had renewed confident that I do just about anything. And I did! Thank you for giving me my life back. I will always treasure you and HCRI.”

-Steve F.

 

“Congratulations on the 50th anniversary of HCRI. Thank you for everything you have done for those of use who were born with this problem. I feel very fortunate to have been associated with you and with HCRI for so many years.

You have done amazing work and touched so many lives, plus done so much to advance an understanding of the roots of this complex condition.  Thank you for giving me an opportunity to participate in your research when I was an undergraduate and later when I assisted with IT projects. HCRI has been such an important part of my life. I know that I owe my fluency and many other things to what I have learned at the institute.”

-Cary W.

 

“Thank you from the bottom of my heart for developing the tools that have given me a life with fluent speech. Stuttering closed so many doors for me and I am forever grateful that your leading research found a sustainable solution.”

-Josh B.

 

“Congratulations on reaching this incredible 50-year milestone. I can’t thank you enough for helping transform my life by giving me the gift of fluency.  You are an incredible light to the world, helping to brighten it each day. We are so lucky to have you. May God continue to give you strength to lead us in health and happiness for another 50 years! Thank you.”

-Avner B.

 

“HCRI has changed my life. People have no idea I stutter. Only my family and people back home can attest to my severe speech impediment. Your program continues to be life changing for many. But of course, it is not a pill. I am so glad you have maintained the high standards of treatment and continue to fine tune the program, as well. May God grant you many more years of health and service to the stuttering community. Happy 50th anniversary. That is quite an accomplishment!”

-Dorothy C.

 

“What can I say about your therapy program and follow-up. I have been allowed to have the kind of speaking life I always wanted to have. One that I can control and one that can help me realize my educational and professional goals. Thank you.”

-Randy B.

 

“I am deeply indebted to Ron Webster. When I was a new professor wondering about my future, he gave me hope. He took unhurried time with me. Because of his bold and ingenious work, I was freed from a debilitating stutter. I am leaving tomorrow to lecture in Israel. If not for Dr. Webster, I would not have been able to do this. Thank you, Dr. Webster!”

-Gerald M.

 

“Words can’t describe the joy I have had with fluency obtained during my time over the years with HCRI’s help. As a client attending in 1974, I was able to have ‘free words.’ The Lord be praised. Your guidance and passion for the work accomplished these 50 years touches lives today.”

-Jeannie L.

 

“My family, friends, colleagues, and I thank you for your amazing work. Overcoming an obstacle like stuttering brings joy to so many. I would not have had the confidence to pursue a career in law without HCRI.”

-Andrew K.

 

“What a wonderful journey HCRI has had. Think of how many people your institute has helped and made happy. You and your staff should be extremely proud.”

-Lane M.

 

“Many congratulations on the 50th anniversary of HCRI. As an alumnus, I can’t express what the stuttering therapy program has meant to me, and how much targets have improved my life and increased my personal success and fulfillment. HCRI’s research initiatives are very exciting, and I look forward to hearing about future discoveries and advancements that are sure to impact many people who stutter.”

-David. O.

 

“Congratulations on 50 years of dedication to helping us overcome such a difficult circumstance. I just want to say thank you! I truly have no idea what I would be doing with my life if I never came to HCRI.”

-Earl H.

 

“Congratulations to you and the HCRI staff on your 50th anniversary. Thank you for providing the gift of fluency and changing lives of individuals around the world.”

-Shannon A.

 

“I struggled with stuttering all of my life, until I learned of your research on stuttering and how to overcome it. While it took me several times at your clinic to learn how to achieve and use the targets, they have given me fluency ever since.  Thank you for your dedication to finding a solution to stuttering.”

-Keith S.

 

“If I were to write a book about my life, a common thread throughout would be my struggle with speech. But, now at the age of 40, I feel that the narrative would change to a story of hope.  When I attended HCRI, I didn’t know what it meant to ‘feel’ while I spoke. But, after months fluency practice, I do know. I feel that my speech has improved, as well as my confidence. Thanks so much for all you’ve done.”

-Michael D.

 

“What a pleasure it is to congratulate you on HCRI’s 50th anniversary! It is a tribute to you and the excellent staff. I personally benefited from attending the therapy program, and I stay in touch regularly with my clinician. Thank you for providing a high-quality program and the opportunity for ongoing support.”

-Barbara B.

 

“I can’t thank you enough for the impact your program has had on my son. After completing the program at HCRI, he has become a lot more confident, structured and motivated. My son will be graduating early with honors and hopes to be an electrical and computer engineer. He is currently working on his college applications. His experience at HCRI has been front and center – and mentioned in all of his essays for admission due to the positive influence it has made in his life. I truly appreciate all you do for teens and adults navigating life with stuttering.”

-Maria N.

 

“HCRI and Dr. Webster have helped thousands in 50 years. I am one of these individuals whose life has changed! From my first time in 2002 to the refreshers I religiously attended, you have given me the tools to go after jobs and opportunities I never thought possible. Dr. Webster and HCRI are our King Midas!  What you touched turned gold; and for that, we say: to the next 50 years!”

-Joel S.

 

“I would like to congratulate you on HCRI’s 50th anniversary!  I can never thank you enough for changing my life with your program. And, I’m sure there are countless others who feel the same. Although I did not get to meet you during my time at HCRI, it was clear to see that you and your staff care about each and every one of your clients that come through. HCRI was a godsend for me. It gave me a gift that I never that was possible.  Since leaving HCRI, I have never talked more in my life and have wanted to be involved in more activities due to my fluency.  Thanks to your hard work and dedication, I am able to communicate effectively and let my opinions be heard. I cannot fully express my gratitude.”

-Matt J.

 


 

About HCRI

Since its doors opened in 1972, Virginia-based HCRI, a 501(c)(3) charitable organization, has become a leader in stuttering research and the development of innovative, scientifically derived therapy approaches.

Specially trained clinicians at HCRI have treated more than 7,000 individuals who stutter. Clients come from all walks of life and include broadcasters, teachers, engineers, musicians, students, doctors, military personnel, business professionals, police officers, actors, a supreme court nominee, and even royalty.

HCRI is located at 7851 Enon Drive, Roanoke, Va. 24019. For more information, visit www.stuttering.org or contact HCRI at (540) 265-5650 or info@stuttering.org.

 

Michael Shaw’s Journey From Stuttering to Fluency

The Transforming Impact of HCRI Stuttering Therapy: Opening the Door to Hope and Opportunity

Business executive and retail owner Michael Shaw stuttered since he was a child. He endured bullying and teasing throughout his school years and only spoke when necessary because of his stutter. His speech caused immense fear and eroded his confidence.

He recalls a low point in his young life when he made it to the finals in a school spelling bee, but had to drop out because he couldn’t get the word to come out of his mouth.

Michael Shaw
Michael Shaw

“I’ll never forget, when I was a teen, calling a girl to ask her out on a date. Yet, I couldn’t speak because of my stutter and just hung up,” Mr. Shaw recalls. “I thought I’d never have a girlfriend because of my stuttering.”

Approximately 66 million people worldwide suffer from the effects of stuttering, with three million in the U.S. Stuttering can negatively impact an individual’s self-esteem and wellbeing, as well as impede educational attainment, career options and social growth.

The speech disorder is characterized by repeated or prolonged sounds, syllables, blocks and words that disrupt speech. An individual who stutters knows what he or she wants to say but has difficulty uttering the words.

Treating His Stuttering

To help address his stutter, Mr. Shaw’s parents enrolled him in a variety of speech therapies during his youth. But, none of the treatments helped him achieve the ability to control his stuttering and speak fluently.

Ever determined and despite his stutter, Mr. Shaw made it through high school, graduated from college, and started a promising job in the retail sector. During his employment, Mr. Shaw’s boss saw a television news program about the innovative stuttering therapy program at Hollins Communications Research Institute (HCRI). He shared the information with Mr. Shaw because he was impressed with his employee’s drive and potential.

Two months later, Mr. Shaw attended HCRI’s immersion therapy in Roanoke, Virginia. The therapy was unlike any other he tried. He participated with 10 other stutterers from across the U.S. The group members bonded with one another and served as a support system throughout therapy.

Together, the program participants were taught how to address faulty speech-muscle behaviors that give rise to stuttering and replace them with new speech-muscle activities that produce fluent speech.

Mr. Shaw found his HCRI therapy experience challenging and life-changing

HCRI’s Behavioral Approach

According to HCRI President Ronald L. Webster, Ph.D., “Stuttering is a misunderstood and often mistreated condition. HCRI research demonstrated that stuttering is a physical phenomenon – rather than an emotional response triggered by anxiety or stress. While anxiety or stress may exacerbate stuttering, it is not the root cause.”

HCRI Headquarters
HCRI’s stuttering therapy institute is located in Roanoke, Virginia.

With research revealing stuttering is physically based, Dr. Webster and his team developed a systematic treatment that restricts the flawed muscle activity that stutterers experience, allowing individuals to stop stuttering and speak fluently.

With HCRI’s behavioral therapy, 93% of therapy participants achieve fluency by the end of their 12-day program. (When Mr. Shaw attended, therapy was 19 days.) Follow-up research shows 75% of clients maintain fluency for the long term. These fluency results are among the highest documented outcomes of any stuttering therapy.

Returning Home from HCRI

After HCRI therapy, Mr. Shaw could speak fluently for the first time in his life. He points out that HCRI is not a cure for stuttering – because that doesn’t exist. Rather, HCRI teaches lifelong skills to control stuttering and speak fluently. To habituate fluency skills, Mr. Shaw practiced his speech daily after treatment. He talked into a recorder and then checked the accuracy of his fluency. He would also call restaurants and other establishments to practice speaking fluently.

As time passed, whenever he felt his speech starting to slip, he would return to the tools from therapy to get his fluency back on track. Today HCRI provides clients with a host of practice opportunities including a proprietary app, computer software, alumni call sessions, and zoom meetings.

Going Back to Work

When Mr. Shaw returned to his job, he was quickly promoted to a management position that required him to travel and speak in front of groups of all sizes.

Mr. Shaw is convinced that, without HCRI therapy, he would not have been able to perform as effectively in his new position. “HCRI therapy shot me upward. I wasn’t shy anymore. I overcame my fear of speaking and was ready to use my voice in all types of situations,” he said.

He added, “Getting that fear of speaking out of my life was like having wings that set me free.”

Helping Others, Giving Back

During his notable career, Mr. Shaw managed up to 400 employees at a time when he worked with Lerner Shops, a women’s retailer. He later opened 18 Haagen Dazs stores. Fluency and overcoming his fear of speaking created a path to his rewarding career. He also attributes his success to his innate ability to manage people and relationships.

For example, in his management roles, Mr. Shaw regularly held “backroom chats” with employees to help them excel in their positions. He is an effective, empathetic communicator. Through the years, he hired individuals who stutter and gave them counsel along their career paths. He recommended HCRI therapy to help employees who stutter achieve fluency, like he did early in his career.

Now, to give back and benefit others, Mr. Shaw is helping to raise funds for HCRI’s stuttering therapy scholarship program. The program helps those with financial need attend HCRI treatment. His desire is to provide a means to help others break free from stuttering and achieve their full potential through fluency.

According to Mr. Shaw, “The one word that best describes how fluency changed my life is ‘freedom.’ My experience with HCRI therapy enabled me to live free of fear and experience life to the fullest.”

About HCRI

HCRI was founded by Ronald L Webster, Ph.D. in 1972 to investigate stuttering through scientific discovery and treatment innovation. Virginia-based HCRI, a 501(c)(3) charitable organization, has become a leader in stuttering research and the development of innovative, scientifically derived therapy approaches.

Clinicians at HCRI have treated more than 7,000 individuals who stutter. Clients come from all walks of life and include broadcasters, teachers, engineers, musicians, students, doctors, military personnel, business professionals, police officers, actors, a supreme court nominee, and even royalty.

HCRI is located at 7851 Enon Drive, Roanoke, Va. 24019. For more information, visit  www.stuttering.org or contact HCRI at (540) 265-5650 or info@stuttering.org.

 

From Stuttering to HCRI Therapy to Treating Others Who Stutter

Ross S. Barrett believes luck was on his side when it comes to his stuttering and career. Yet, more than luck, it was his drive to achieve fluency, hard work, and passion that led him to where he is today.

Ross S. Barrett
Ross S. Barrett, M.A., CCC/SLP

Barrett recently retired after 39 years as Director of the Precision Fluency Shaping Program at Eastern Virginia Medical School (EVMS). In character with his dedication to helping persons who stutter, he still maintains an office at the institution to provide support to former clients who may need him.

His journey to fluency wasn’t easy. Barrett began stuttering at the age of two and endured his speech condition during his educational years. While many children may stutter at some point in their young lives, Barrett was among the 25 percent of stuttering kids who never outgrow it.

During his formative years, Barrett was taunted by schoolmates because of his stutter. As he grew older, his speech hindered his academic performance in high school and college. He tried traditional speech therapies, hypnosis and even faith healing to address his stuttering. None of the methods worked.

New Hope and Opportunity

When he was 28, Barrett saw an article in the New York Times about a new behavioral treatment for stuttering, which was invented by Ronald L. Webster, Ph.D. at his Hollins Communications Research Institute (HCRI). Webster founded nonprofit HCRI in 1972 to investigate stuttering from a scientific perspective and focus on treatment innovation.

Barrett refers to the New York Times article as his “first stroke of luck” on his journey to fluency. He contacted HCRI to enroll. While the waiting list was typically long to get into the immersion program, Barrett was able to secure a spot in a matter of months. He calls that his “second lucky break.”

“Once I started HCRI therapy, I knew it was the type of help I needed – therapy that addresses the physical aspects of stuttering and not an approach that focuses on emotions or psychology,” Barrett said.

He found HCRI stuttering therapy to be a transforming experience. For the first time in his life, Barrett was able to control his stuttering and speak fluently. By staying true to the fluency skills he learned at HCRI, he has maintained the ability to speak fluently and confidently throughout his life.

HCRI’s Science-Based Therapy

HCRI stuttering therapy is a comprehensive behavioral therapy program invented by Webster and continually honed through the years. The institute’s approach teaches individuals how to address misbehaving speech-muscle activities that give rise to stuttering – and replace them with new muscle behaviors that produce fluent speech.

Dr. Ron Webster
Ronald L. Webster, Ph.D., HCRI President and Founder

“At the heart of the stuttering problem is the faulty speech-muscle contractions that occur within the speech production system. Speech organs are forced into positions that are wrong for saying the intended sounds,” Webster explained. “Stuttering occurs as a downstream result of muscle events going wrong earlier in time.”

Once therapy participants are taught new ways to use their speech muscles, they acquire the ability to control their stuttering and speak fluently. Research demonstrates that 93 percent of HCRI program participants achieve fluency in 12 days, and 75 percent maintain fluent speech over time.

HCRI’s specially trained clinicians work with participants using systematic treatment protocols and proprietary therapy technology that guide individuals step-by-step through the treatment process. Therapy occurs in HCRI’s clinical setting, as well as in real-world environments. When clients return home, they are provided with a comprehensive package of post-therapy support and fluency tools to help them maintain fluency skills.

“Many therapy programs have evolved from the groundbreaking work Ron accomplished,” Barrett said.

Changing His Career to Pursue a Passion

Barrett’s experience at HCRI inspired him to change his career focus from finance to speech pathology. He went to graduate school and earned his Master’s degree in speech language pathology. After graduation, he said he “lucked out” again. Webster called Barrett and invited him to join the institute as a speech therapist and administer HCRI’s program.

After more than 10 years with HCRI, Barrett relocated to Norfolk, Virginia with his wife when she accepted a new position there. While in Norfolk, Barrett was given the unique opportunity to start his own fluency program at EVMS. Webster arranged for him to use a version of HCRI stuttering therapy so Barrett’s clients could benefit from the same life-changing therapy that he personally experienced.

Barrett and Webster developed a close friendship through the years. Recently, Webster received a note from Barrett sharing that he had retired. Here are excerpts from that communication.

“… I ran my last 12-day therapy group in July. I have officially retired. I will keep a small office on campus just to answer past patient calls.

I wish to thank you for all your support over the years professionally and personally. The therapy you developed changed my life and thousands of others.

It was 50 years ago in July that I came to HCRI as a client. Little did I know then the impact therapy would have on my life…”

Webster said, “I was touched by Ross’s note. I have tremendous respect for him and what he has accomplished. He is a valued friend and colleague.”

Was it Really Luck?

Barrett sums up the role luck has had in his life by noting…

  • I lucked out seeing the New York Times article about Ron and HCRI.
  • I lucked out getting into HCRI’s therapy program without a long wait.
  • I lucked out when Ron asked me to serve as a speech therapist at the institute.
  • I lucked out when Ron gave me the opportunity to use a version of HCRI’s therapy program at EVMS.

Advice for Selecting the Right Stuttering Therapy

For those interested in stuttering therapy, Barrett recommends researching various therapy options and requesting a track record of success from each provider being considered. He also advises to talk with former clients, as well as get a feel for how transparent providers are about their therapy approach.

About HCRI

Since opening its doors in 1972, Virginia-based HCRI, a 501(c)(3) charitable organization, has become a leader in stuttering research and the development of innovative, scientifically derived therapy approaches.

Clinicians at HCRI have treated more than 7,000 individuals who stutter. Clients come from all walks of life and include broadcasters, teachers, engineers, musicians, students, doctors, military personnel, business professionals, police officers, actors, a supreme court nominee, and even royalty.

HCRI is located at 7851 Enon Drive, Roanoke, Va. 24019. For more information, visit  www.stuttering.org or contact HCRI at (540) 265-5650 or info@stuttering.org.

Here’s What Makes HCRI Stuttering Therapy Effective and Enduring

As you evaluate your stuttering therapy options, the key is to find a treatment approach that is proven, effective and long-lasting. To assist in your selection process, following is an overview of the 12-day therapy at Hollins Communications Research Institute (HCRI). This one-of-a-kind immersion program was created by Dr. Ronald Webster and his clinical team.

 Below Dr. Webster provides a summary of HCRI stuttering therapy. You can use this overview to compare HCRI’s offerings to other available treatment options – and determine which therapy is best for you.

Dr. Webster Explains How HCRI Therapy is Designed

When our team created HCRI stuttering therapy, we focused on the behavioral analysis of stuttering. Our goal was to develop a premium stuttering therapy that was:

1. Objective

2. Reliable in its outcome

3. General in its usefulness across different persons who stutter

Dr. Ron Webster
HCRI President and Founder Dr. Ron Webster

Through the years, we have applied our latest research findings to continually refine HCRI’s stuttering therapy offering.

At the heart of HCRI therapy, we identified new core features that define stuttering. We developed new methods of training that empower our clients to actively generate fluent speech and to retain the skills learned in therapy.

One of the remarkable features of HCRI stuttering treatment is that it takes into account the inherent complexities of speech production and provides specialized, focused training, thereby improving the quality of our therapy process.

Our stuttering therapy represents a comprehensive treatment system that deals directly with the:

  • Motor malfunctions of speech
  • Formation of correct positioning of the vocal tract for different speech elements;
  • Built-in transfer training that facilitates everyday speech fluency after therapy is completed
  • Reduction in speech-related anxieties by means of in vivo (real world) desensitization exposure. The integration of transfer training and desensitization adds power and longevity to therapy outcomes

An additional feature is that vocal control training for fluent speech is facilitated by our electronic measurement of energy profiles that actively generate fluent speech. Our proprietary technology helps clients better learn and understand precisely how their fluent speech is being generated. Exacting physical measurements provide an unprecedented level of learning and retention of key fluency skills.

HCRI therapy is built upon the physical details that create fluent speech. By working properly with the correct physical details, you’ll benefit from the strength and longevity of fluency skills.

As a result, with HCRI ‘s comprehensive therapy system, you will acquire skills to control your stuttering in all types of situations and speak fluently with confidence.

HCRI Fluency Results – Effective and Long-Lasting

HCRI stuttering therapy addresses stuttering that ranges from mild to severe. THe institute’s clinicians have treated more than 7,000 individuals, aged 11 to 73, from across the U.S. and 50 countries.

Research demonstrates:

  • 93% of participants achieve fluency by the end of their 12-day therapy program
  • 75% of participants retain fluency when evaluated two years post therapy

Before-and-After Therapy Videos >>

Clients include broadcasters, athletes, teachers, engineers, students, doctors, military personnel, business professionals, police officers, actors, paramedics, and other individuals from all walks of life.

Before coming to HCRI, most program participants tried other therapies for stuttering without long-term success. HCRI therapy is designed to teach fluency skills that can be maintained for a lifetime.

More About HCRI

Hollins Communications Research Institute was founded by Ronald L Webster, Ph.D. in 1972 to investigate stuttering through scientific discovery and treatment innovation. Virginia-based HCRI, a 501 (c) (3) charitable organization, has become an international leader in stuttering research and the development of innovative, scientifically derived therapy approaches.

HCRI is located at 7851 Enon Drive, Roanoke, Va. 24019. For more information, visit  www.stuttering.org, or contact HCRI at (540) 265-5650 or info@stuttering.org.

Overview of HCRI Work and Accomplishments

As Hollins Communication Research Institute (HCRI) enters its 50th year of stuttering research and treatment innovation, here’s a summary look at the breadth of work and accomplishments of the nonprofit center.

What started in 1972 as a small, stuttering research and therapy operation in Roanoke, Virginia has evolved into an international center that has treated thousands who stutter with one of the most sophisticated and successful treatment programs available today.

HCRI HeadquartersStuttering Therapy

  • Under the direction of Founder and President, Ronald L. Webster, Ph.D, HCRI was the first to develop a comprehensive behavioral therapy for stuttering that is based on science. Since introducing the stuttering therapy program in 1972, HCRI has continually innovated and refined the therapy program by developing specialized electronics, computer software programs, detailed clinician training protocols, and technologically advanced therapy tools.
  • Dr. Webster and his research team invented the Voice Monitor, a real-time, computer-based speech measurement and feedback system. The Voice Monitor makes fluency-skill learning more exacting for clients and increases clinical efficiency by 500%. A U.S. patent was awarded for the Voice Monitor.
  • HCRI stuttering therapy delivers among the highest documented fluency outcomes of any stuttering treatment available. 93% of clients achieve fluency in 12 days and 75% maintain fluent speech when evaluated two years later.
  • HCRI introduced the first web-based home practice tool for clients called FluencyNet, which reinforces fluency skills learned in therapy.
  • HCRI introduced an iPhone app that serves as a “clinician in your pocket,” providing real-time speech feedback to stuttering therapy clients, helping them practice and stabilize newly acquired fluency skills.
  • HCRI created a training program exclusively for the institute’s clinicians to ensure consistent, results-based therapy delivery. This rigorous 500-hour program surpasses any available professional training or certification in the field.
  • HCRI clinicians have treated more than 7,000 individuals who stutter, aged 10 to 75,  from across the U.S. and 50 countries.

Recognition

  • HCRI’s stuttering treatment program was the distinguished recipient of the First Award for Scientific Merit by the American Speech-Language-Hearing Association.
  • The Virginia General Assembly, during Governor Jim Gilmore’s term,  unanimously passed a house joint resolution commending HCRI for its groundbreaking research and therapy innovation.
  • HCRI was recognized by Virginia Business magazine for its long-standing track record of innovation.
  • HCRI Founder and President Ronald L. Webster, Ph.D., a licensed clinical psychologist and Professor Emeritus of psychology, received the Outstanding Contributions in the Application of Psychology award from the Virginia Psychological Association.

Research

  • HCRI partnered with the National Institute on Deafness and Other Communications Disorders (NIDCD) on a pioneering study that discovered three mutant genes that are linked to stuttering. Results of the study were published in the February 2010 issue of the New England Journal of Medicine.
  • HCRI conducted a study on the genetics of stuttering and mucolipidosis in association with NIDCD, the Laboratory of Communications Disorders, and Porter Neuroscience Research Center. Findings demonstrated the two conditions are associated with different variants in the same genes. The study and its findings were published in the July 15, 2015 issue of the European Journal of Human Genetics.
  • HCRI participated with the NIDCD in the first study to evaluate stuttering therapy outcomes among a group of stutterers who possess one of the mutant genes for stuttering compared to a group of stutterers who do not carry the same mutant genes. The results were published in the July/August 2019 issue of the Journal of Communications Disorders.

Published Work

  • Dr. Webster has written dozens of stuttering articles and book chapters throughout his career that have appeared in publications including the Journal of Speech and Hearing Research, Journal of Fluency Disorders, Journal of Abnormal Psychology, and others.
  • Dr. Webster published a comprehensive book on stuttering and treatment that offers new insights and dispels the misinformation that surround the disorder. The book is “From Stuttering to Fluent Speech, 6300 Cases Later: Unlocking Muscle Mischief.”
  • He also authored an inspirational children’s story book on stuttering, “Katie: The Little Girl Who Stuttered and Then Learned to Speak Fluently.

HCRI Media Coverage

The HCRI therapy program and Dr. Webster’s work have been the subject of coverage in national, regional and local media. HCRI media coverage includes NBC Today, CBS Morning News, Good Morning America, 20/20, Nightline, New York Times, Wall Street Journal, Washington Post, Newsweek, Scientific American, Sports Illustrated, U.S. News and World Report, and many others. In addition, articles about HCRI stuttering therapy have appeared in digital outlets across the internet.

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About Stuttering
Approximately 66 million people worldwide suffer from the effects of stuttering, with three million in the U.S, according to NIDCD. The condition is characterized by repeated or prolonged sounds, syllables, blocks and words that disrupt speech. Stuttering can impair social growth, educational attainment, and job potential.

About HCRI
HCRI was founded by Ronald L Webster, Ph.D. in 1972 to investigate stuttering through scientific discovery and treatment innovation. Virginia-based HCRI, a 501 (c) (3) charitable organization, has become an international leader in stuttering research and the development of innovative, scientifically derived therapy approaches.

Clients come from all walks of life and include broadcasters, teachers, engineers, musicians, students, doctors, military personnel, business professionals, police officers, actors, a supreme court nominee, and even royalty.

HCRI is located at 7851 Enon Drive, Roanoke, Va. 24019. For more information, visit www.stuttering.org or contact HCRI at (540) 265-5650 or info@stuttering.org.

Young HCRI Alumnus Driven to Help Others Who Stutter

In sixth grade, Stanley D. Craig, Jr. of Richmond, Virginia, came to Hollins Communications Research Institute (HCRI) for stuttering therapy after trying other treatments that did not produce results. At age 12, he was among HCRI’s youngest therapy participants.

Yet, Stan’s age didn’t deter his commitment to working hard during HCRI’s 12-day immersion therapy. His focus and dedication to the therapy process paid off. Stan achieved the ability to speak fluently and confidently by the end of his program. For the first time in his life, he could say his name, carry on conversations, and answer questions in class.

HCRI Alumnus Stanley D. Craig, Jr.
HCRI Alumnus Stanley D. Craig, Jr.

Now a 17-year-old junior in high school, Stan continues to speak fluently in all types of environments from school to social settings. He practices his fluency skills regularly and stays in touch with HCRI clinicians. He followed up his therapy with an HCRI refresher program to hone his fluency skills.

“Before HCRI, stuttering impacted my life on many levels, leaving me almost mute when I was in middle school. It took me up to 17 attempts to produce an initial sound. I developed a secondary behavior of head nodding, which exacerbated my struggles to communicate with peers and teachers,” Stan explained. “While I persevered and tried to push through my disfluencies, I was treated differently by kids and adults alike.”

“After HCRI, the change in my speech was remarkable. Now I am comfortable talking in any situation. HCRI therapy is life-changing and I want to do everything possible to help others who stutter,” Stan said.

Stan put his words into action…

Helping Teens Who Stutter

Stan organized a support group for teens who stutter in the Richmond area. The group is called SSEAT, which stands for Stuttering Support, Empathy, and Advocacy for Teens. SSEAT provides opportunities for teens to practice their fluency skills and promotes advocacy of stuttering research and intervention.

“SSEAT’s mission is to provide a safe community for stuttering teens to support each other through social, emotional, and academic impacts of their expressive language differences,” Stan said.

In addition to SSEAT, Stan mentored a student who attended HCRI therapy to help him practice and habituate his speaking skills.

Raising Funds for Therapy Scholarships

Stan set up a GoFundMe account to fund HCRI therapy scholarships for those with financial need. His goal is to make life-changing stuttering therapy more accessible to those who otherwise could not afford treatment. He raised more than $8,400 within two weeks and is continuing to push for more therapy scholarship dollars.

Research Internship with HCRI

Considering his passion for helping teens and young adults who stutter, Stan reached out to HCRI President and Founder Ronald L. Webster, Ph.D. He inquired about doing a summer internship with the institute.

The two discussed potential projects that would be meaningful to Stan as an aspiring physician and research scientist, as well as beneficial to the institute. As a result, Stan’s internship work will involve collecting data of speech utterances and quantifying measurements that differentiate stuttered speech from fluent speech.

“Stan is an impressive individual. I remember when he came to HCRI at the age of 12. Even then, he was a go-getter – intelligent and hardworking. I’m looking forward to his contributions,” Dr. Webster said.

About HCRI

Hollins Communications Research Institute was founded by Dr. Webster in 1972 to investigate stuttering through scientific discovery and treatment innovation. Since that time, Virginia-based HCRI, a 501 (c) (3) charitable organization, has become an international leader in stuttering research and the development of innovative, scientifically derived therapy approaches.

HCRI clients come from all walks of life and include broadcasters, teachers, engineers, musicians, students, doctors, military personnel, business professionals, police officers, actors, a supreme court nominee, and even royalty.

HCRI is located at 7851 Enon Drive, Roanoke, Va. 24019. For more information, visit  www.stuttering.org, or contact HCRI at (540) 265-5650 or info@stuttering.org.

The Cost of Your Stuttering vs. the Cost of Stuttering Therapy at HCRI

Ronald L. Webster, Ph.D.
Ronald L. Webster, Ph.D.

In this article, Ronald L. Webster, Ph.D., president of Hollins Communications Research Institute (HCRI), offers a quantitative perspective to help individuals evaluate the cost that stuttering imposes on people’s lives compared to the cost of attending HCRI’s 12-day stuttering therapy program. 

HCRI’s immersion therapy is a powerful, proven behavioral based treatment that works across stuttering types and severities. During therapy, participants systematically learn how to replace the distorted contractions and movements that give rise to stuttering with new speech-muscle behaviors that generate fluent speech.

Looking at the Numbers: Is HCRI Stuttering Therapy Worth the Investment?

It has been estimated that individuals who stutter, compared with those who do not stutter, are likely to earn approximately $7,000 to $8,000 less per year. The simple fact is that stuttering is generally viewed as a negative in the world of work. Typical business hiring practices and promotion policies do not provide accommodations for persons who stutter.

Cost of Stuttering1

Over the course of a working lifetime of 45 years, the anticipated personal earnings of the person who stutterers is approximately $335,000 less than for a person who does not stutter. That represents slightly over one third of a million dollars of lost earnings. And, in a significant number of potential high achievers, the lost earnings could be much higher.

Cost of Stuttering TherapyNow, contrast that number of lost wages with the cost of stuttering therapy at HCRI, with its high probability of a successful, fluent outcome.

The present HCRI stuttering therapy fee of $4,285 provides an intensive 12-day program involving 100 hours of treatment, pre- and post-therapy evaluation, and practice. That means that the actual cost of this program is under $43 per clock (60-minute) hour. Contrast that with other therapies that may well be $80 to $120 per 45- to 50-minute clinical hour. The lifetime cost of HCRI stuttering therapy comes to 1.8 cents per day.

Your Return on Investment with HCRI

Considering the potential of lost wages over a working lifetime, the investment in HCRI stuttering therapy delivers impressive returns.

Therefore, the return on investment of your therapy fees has the potential to be significant over a career.

Beyond the Money

You may also wish to learn that 78% of program graduates surveyed indicated they had increased their quality of life after participating in HCRI therapy.  In the same survey, 79% said their personal happiness and satisfaction increased and 84% reported greater confidence after participation.

There are genuine personal and economic factors to be considered when you are selecting a stuttering treatment program. Our program at HCRI provides exceptional value to our clients.

Proven Results

Research demonstrates that 93% of HCRI stuttering therapy participants achieve fluent speech by the end of their 12-day program. When evaluated two years after therapy, 75% maintain their ability to speak fluently. These numbers represents among the strongest documented outcomes of any stuttering therapy.

Therefore, there is a strong likelihood of success with HCRI stuttering therapy. Your commitment to the therapy process at HCRI plays a key role in your outcomes, as well.

We invite you to learn more about our approach to stuttering therapy and how our science-based treatment can benefit you. For more information, contact us at (540) 265-5650 or via email. Our website at www.stuttering.org also offers extensive information on our program and what you can expect.

This Fighter Pilot Addresses His Stuttering with Positivity and Action

Navy fighter pilot Justin Norton never lets his stuttering get in the way of what he wants to accomplish in life. As a young child, he remembers how hard it was to simply say his name and get his words to flow smoothly and quickly. However, he always would do his best to communicate, while brushing off the teasing and strange looks from others. As he got older, he kept a positive attitude and maintained an active social life even with his stuttering.

When he finished high school, Justin attended Saint Cloud State University in Minnesota. It was there that he learned how to fly airplanes. Soon after he graduated, he joined the Navy and began flight training. He quickly rose to the rank of Navy Lieutenant and became a member of the Strike Fighter Squadron known as the “Black Knights.” The Black Knights are an operational fleet squadron flying the F/A-18 Super Hornet.

“When I was in the Navy, I noticed my stuttering getting progressively worse under the pressure of my increased responsibilities,” Justin said. “My speech was affecting my flying, and my ability to deliver flight briefs and de-briefs. I knew I needed to address my stuttering to be as effective as possible.”

While Justin participated in stuttering therapy with speech-language pathologists during his youth, he knew he needed a therapy approach that would transform his speech for the long term. His wife learned about the intensive stuttering therapy program at Hollins Communications Research Institute (HCRI) in Virginia. After extensively researching HCRI, he enrolled in the institute’s 12-day treatment program.

HCRI stuttering therapy participant Justin Norton
HCRI stuttering therapy participant Justin Norton is pictured here with his family standing next to the F/A-18 Super Hornet he flies for the Navy.

Grounded in science, HCRI stuttering therapy is a one-of-a-kind behavioral therapy invented by HCRI Founder and President Ronald L. Webster, Ph.D. The therapy approach teaches individuals how to address misbehaving speech-muscle activities that give rise to stuttering – and replace them with new muscle behaviors that produce fluent speech. Specially trained HCRI clinicians work with participants using systematic treatment protocols and proprietary therapy technology that guide individuals step-by-step through the treatment process.

“HCRI is one of the best things I’ve done in my life. I acquired lifelong skills to control my speech and learned the ‘what’ and ‘why’ of my stuttering. I’m so thankful for the team at Hollins,” Justin remarked.

When he returned to his Navy responsibilities Justin’s fluency was noticeably improved. There was a marked difference in his ability to communicate while flying, as well as briefing and debriefing flights.

“When he attended our therapy, Justin was fully committed to the treatment process and achieved fluency by the end of his 12-day program. Since returning to his naval air station, he practices daily to habituate his newly acquired fluency skills. Moreover, he knows that to win, sometimes you need to work hard – and he has done just that,” Dr. Webster said.

Dr. Webster also noted that Justin’s ability to speak fluently will open up many career pathways.

When asked about his advice to persons who stutter, Justin said, “My advice to others who stutter is to avoid self-pity and do something about your stuttering rather than be consumed by it. Spend time with people who matter and support you. And, remember to laugh.”

About Stuttering

Approximately 66 million people worldwide suffer from the effects of stuttering, with three million in the U.S, according to the National Institute on Deafness and Other Communication Disorders (NIDCD). The condition is characterized by repeated or prolonged sounds and syllables, blocks and words that disrupt speech. Stuttering can impair social growth, educational attainment, and career potential.

About HCRI

Hollins Communications Research Institute was founded by Ronald L Webster, Ph.D. in 1972 to investigate stuttering through scientific discovery and treatment innovation. Virginia-based HCRI, a 501 (c) (3) charitable organization, has become an international leader in stuttering research and the development of innovative, scientifically derived therapy approaches.

Clients come from all walks of life and include broadcasters, teachers, engineers, musicians, students, doctors, military personnel, business professionals, police officers, actors, a supreme court nominee, and even royalty.

HCRI is located at 7851 Enon Drive, Roanoke, Va. 24019. For more information, visit  www.stuttering.org, or contact HCRI at (540) 265-5650 or info@stuttering.org.

 

A View into Stuttering: Incidence, Characteristics and Treatment

Stuttering is one of humankind’s most misunderstood and mistreated disorders.

Ronald L. Webster, Ph.D.
Ronald L. Webster, Ph.D.

In this primer on stuttering, Ronald L. Webster, Ph.D. provides an overview on the prevalence and characteristics of stuttering, along with key genetic findings and treatment options. Dr. Webster is president and founder of Hollins Communication Research Institute (HCRI). He also is a clinical psychologist, author, and professor emeritus of psychology. HCRI is an internationally recognized center for stuttering research and treatment innovation.

When Did Stuttering First Appear in Humans?

Stuttering is unique to humans and has a long, long history in human experience. Research and publications suggest that stuttering became part of the human condition as long as 60,000 years ago and evolved along with our species, homo sapiens.

Ancient Egyptian clay tablets from 4,000 years B.C. referenced stuttering and labeled it “nit-nit.” Chinese poetry noted stuttering over 2,500 years ago B.C. The Bible and Koran make reference to stuttering in a number of instances. In particular, the Bible suggests that Moses may have been a stutterer and, for that reason, asked his brother Aaron to read the Ten Commandments after he came down from the mountain.

Incidence of Stuttering

Stuttering, also known as stammering, is a global disorder, occurring in one-percent of the population. Thus, in the U.S., there are approximately three million persons who stutter. Globally, stutterers number about 70 million. Stuttering affects four times as many males as females. The type and severity of stuttering varies by individual – and the condition may change in intensity, based on the day and speaking situation.

Characteristics and Onset of Stuttering

Individuals who stutter experience involuntary disruptions in their flow of speech, which impacts their ability to speak fluently and effectively communicate in everyday situations.

primer on stutteringStuttering is characterized by interruptions in the flow of speech that take the form of repetitions of sounds, syllables and words (as with “my-my-my-my house”); prolonging the initial sounds of syllables (like “n-n-n-no”); and voice blockage when no sound is produced. These speech characteristics may be accompanied by overt physical behaviors, such as rapid eye blinks, facial twitches or tremors of the lips.

The onset of stuttering typically occurs in 4 to 5 percent of children. It happens when children are between two and four years of age, as speech and language skills are developing. While about 69% of children will outgrow the problem by age 12, their stuttering can negatively impact friendships, daily interactions, and school performance.

If childhood stuttering persists into adolescence, it is unlikely that spontaneous remission will occur as the person ages. Life-long stuttering can dramatically impede social, educational and economic growth, as well as limit the realization of an individual’s personal potential. Stutterers are estimated to earn about $5,000 to $8,000 per year less than their peers who do not stutter.

More on the cost of stuttering >>

Role of Genetics in Stuttering

Stuttering is well known to occur within families. Around 70% of persons who stutter can identify another family member or members who stutter.  For men who have ever stuttered, 9% of their daughters and 22% of their sons likely will be stutterers. For women who have ever stuttered, 17% of their daughters and 36% of their sons likely will be identified as stutterers. Thus, the evidence suggests that women pass on genetic material related to stuttering more than men, even though they are found to stutter less themselves.

In a breakthrough study by the National Institute on Deafness and Other Communication Disorders (NIDCD), three mutant genes linked to stuttering were identified, and the identification of a fourth mutant gene followed. HCRI collaborated with the NIDCD on this genetic research, as well as with follow-up studies.

HCRI’s work on the genetics of stuttering >>

At the present time, one or more of the mutant genes have been found in approximately 20% of cases showing stuttering. Further research is likely to identify additional mutant genes involved in the causation of stuttering. The key point is that clear evidence of genetic involvement with stuttering support the basic thesis that mechanisms internal to the biological function of humans are causal in stuttering.

In addition to genetic factors, evidence is developing that both children and adults who stutter display anomalies of brain structure and function in areas involved in the production of speech.

Treatment Approaches

There is no cure for stuttering; yet, there are different therapies to help lessen or remedy the condition. Each of the treatments has varying degrees of success and individuals should evaluate treatment options to determine which approaches are best suited to their needs. Therapy options include the following.

  • Traditional speech therapy that involves regularly scheduled sessions with a provider to help reduce disfluency and stress. This type of therapy tends to be open-ended and can last for several years. Fluency outcomes are mildly effective.
  • Counseling-related therapies that focus on helping clients accept their stuttering and decrease communication anxiety. While those treated may benefit from counseling as a means to better accept the fact they stutter, few become fluent.
  • Self-help groups provide a support system for individuals who stutter and help them feel better about their speech. Yet, as with counseling-related approaches, very few individuals achieve fluency.
  • Science-based behavioral therapy, invented by HCRI research scientists, has consistently proven to help individuals achieve and sustain fluent speech. This 12-day immersion treatment teaches persons how to replace faulty speech muscles that give rise to stuttering and replace them with new muscle behaviors that generate fluent speech. Research demonstrates that 93% of therapy participants achieve fluency after 12 days. 75% maintain fluent speech when evaluated 2 years after therapy.

More about HCRI stuttering Therapy >>

About HCRI

HCRI was founded by Ronald L Webster, Ph.D. in 1972 to investigate stuttering through scientific discovery and treatment innovation. Virginia-based HCRI, a 501 (c) (3) nonprofit organization, has become an international leader in stuttering research and the development of scientifically derived therapy approaches.

More than 7,000 individuals from across the U.S. and 50 countries have come to HCRI for stuttering treatment. Clients represent all walks of life and include teachers, business professionals, athletes, broadcasters, engineers, musicians, students, doctors, military personnel, police officers, actors, a Supreme Court nominee, and even royalty.

HCRI is located at 7851 Enon Drive, Roanoke, Va. 24019. For more information, visit stuttering.org or contact HCRI at (540) 265-5650 or info@stuttering.org.